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Pooled Resource Open-Access ALS Clinical Trials Database
Data Sets

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In building PRO-ACT, as part of our data cleaning process for the lab data, units were converted, synonymous tests appearing with different names were merged, and some indecipherable data (less than 1%) were removed (see full list of cleaning changes here ).

Form Name Subjects Records Values Date/Time
Adverse Events 8628 74545 748566 12/29/2015 7:00:17 PM
ALL FORMS 10723 2869973 12638797 1/4/2016 6:16:08 PM
ALS Prize Data 9/27/2013 7:11:48 PM
ALS Prize Slopes 9/27/2013 7:12:03 PM
ALSFRS(R) 6844 60775 791473 12/29/2015 7:00:59 PM
Concomitant Medications 7656 111848 376098 12/29/2015 7:02:27 PM
Death report 4633 4634 8033 12/29/2015 7:02:59 PM
Demographics 10723 10723 39107 12/30/2015 5:02:30 PM
Family History 1007 1071 2452 12/30/2015 5:03:50 PM
Forced Vital Capacity 8848 48856 200200 1/4/2016 6:14:52 PM
Laboratory Data 8342 2445059 9659191 12/29/2015 7:07:18 PM
Riluzole use 8817 8817 17633 12/29/2015 7:05:18 PM
Slow Vital Capacity 2717 9525 25532 12/29/2015 7:05:51 PM
Stratification Challenge PROACT 12/15/2015 1:16:34 PM
Subject ALS History 9394 12058 35967 1/4/2016 6:14:09 PM
Treatment Group 9640 9640 16830 12/29/2015 7:06:18 PM
Vital Signs 9973 72422 717715 1/4/2016 6:15:32 PM
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