Who knows the most about motor neuron disease, including amyotrophic lateral sclerosis?

You do.

Yes, there is much to be known about the genetics, biochemistry, and environmental factors that play a role in ALS. Yes, there are many experts and subspecialists. But no one experiences the burden of the disease as you do. No one knows the frustration of the lengthy work-up for diagnosis as you do. No one knows the despair of searching for successful treatments beyond the few treatments available today.

No one else understands the toll this disease can take upon families, relationships and friends as you do.

A Collaborative Effort to Fight Amyotrophic Lateral Sclerosis (ALS)

Join NowJoin Now

It’s a radical idea: patients, families, doctors, and researchers working together as equal partners.

When you join ALS CORE you’ll be part of a global effort to fight ALS . You’ll work with doctors and researchers to shape the direction of research and care. For perhaps the first time in the history of this disease, your experiences, your concerns, and your ideas will take center stage.